Werner Workshop

Workshop on adult cerebral palsy in honor of Arnold Werner

Sponsored by UCPREF and the Arnold Werner Fund, Allergan, UCP-Michigan, and Michigan State University

Very little is known about the natural history of cerebral palsy and effective treatments. On May 12, researchers from across the country who work with adults with CP discussed their work and shared ideas about adult CP.

Topics included prevention of functional declines and disability, the impact of childhood interventions on later outcomes in adulthood, and issues in research with adults. Community members with CP were invited to attend and discuss their priorities for CP research and its many associated conditions. The goal of this workshop was to help promote further studies on adult CP and encourage adults with CP to consider taking part in research studies.

The workshop was held Monday, May 12, from 7:30 a.m. - 5:30 p.m. at the MSU Kellogg Center in East Lansing. It was supported by UCP Research and Educational Foudation and the Arnold Werner Fund, Allergan, UCP-Michigan, and several MSU College of Human Medicine department, including Epidemiology, Neurology, Psychiatry and the Dean's Office.

 

Workshop Presentations

 
Dr Mindy Aisen, MD, Director of UCPREF
United Cerebral Palsy Research and Educational Foundation
"Welcome to Workshop "
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Michael Andary, MD and Duncan Wyeth, MS
"Dealing with problems that we did not know would exist: A doctor patient partnership"
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Edward Hurvitz, MD,
University of Michigan
"Adulthood with CP: What to expect, what to prevent, and what to celebrate"
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Maxine Kuroda, PhD
Rehabilitation Institute of Chicago
"Empowering adults with CP: Martial arts and self-defense"
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Ronna Linroth, MS
Gillette Children's Specialty Healthcare
"Building a medical home for adolescents and adults with CP"
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Nicole Lomerson, MPH
University of Massachusetts Medical School
Center for Health Policy and Research
"Adults with CP: What they say, what researchers say, and why we should listen"
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Dr. Nigel Paneth, M.D., M.P.H.
Michigan State University
"Long Term Outcomes in Cerebral Palsy"


James M. Renuk, MS
Intramural Sports Coordinator
MSU Intramural Sports & Recreative Service
Michigan State University
"Strength"
PDF 

Laura Tosi, MD
Director, Bone Health Program
Children’s National Medical Center
"Orthopaedic Issues in Adults with CP:
If I Knew Then, What I Know Now"
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Laura Vogtle, PhD, OTR/L
"An exercise intervention to address pain in adults with cerebral palsy"
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Marilyn Seif Workinger, Ph.D
Speech Language Pathologist
Marshfield Clinic
Marshfield, WI
"Communication and Swallowing Issues for Adults with Cerebral Palsy"
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